Ella M

I drew this to outline my experience of having an important appointment I had been waiting for get cancelled during lockdown, and replaced by a telephone assessment. I have lived with chronic pain for about a year now. Lockdown eased the pain, and I was already worried that my assessment would be thrown out the window just because of this. The person I spoke to kept gaslighting me and only focused on me not displaying ONE of the symptoms typical of EDS which is stretchy skin. They did not acknowledge any of the other symptoms which I do present. I added zebra stripes because zebras are the symbol of EDS sufferers. My appointment is now postponed to September so lockdown has delayed my potential diagnosis, and it takes on average about 10 years to be diagnosed with EDS so I’m not hopeful.